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NICU Journey Resource List
With Love and Support from the Adam David Langley Foundation
On Premature Birth Experiences:
“Early: An Intimate History of Premature Birth and What it Teaches Us About Being Human” by Sarah Crewe
“What We Didn’t Expect: Personal Stories about Premature Birth” by The March of Dimes
“Preemies: The Essential Guide for Parents of Premature Babies: by Dana Wechsler Linden
On the Traumatic Birth Experience:
“Birth Shock: How to Recover from Birth Trauma” by Mia Scotland
“Coping with Birth Trauma and Postnatal Depression” by Lucy Jolin
Birth Trauma: A Guide for You, Your Friends and Family to Coping with Post-Traumatic Stress Disorder Following Birth” by Kim Thomas
Grieving and Loss:
“When Bad Things Happen to Good People” by Harold Kushner
“Empty Cradle, Broken Heart: Surviving the Death of Your Baby by Deborah L. Davis
“I Will Carry You: The Sacred Dance of Grief and Joy” by Lisette M. Horn
“A Manual for Heartache” by Cathy Rentzenbrink
“Beyond Goodbye” by Zoe Clark-Coates
“Every Day Spirit: A Daybook of Wisdom, Joy and Peace” by Mary Davis
“The Baby Loss Guide” by Zoe Clark-Coates
“A Time to Decide a Time to Heal” by Molly A. Minnick & Kathleen J. Delp
“The Miscarriage Map” by Dr. Sunita Osborn
“Invisible Mothers” by Emily Long
“You are Not Alone: Letters from Loss Mom to Loss Mom by Emily Long
“This Little While” by Dr. S. M. Johnson and Joy Johnson
“Still His Mama” by Terrell Hatzilias, PhD
“Ended Beginnings: Healing Childbearing Losses ” by Claudia Panuthos & Catherine Romeo
“Fathers Speak” by Emily Long
“From Father to Father” by Emily Long
“Enter the NICU: When Men Enter the NICU and Play the Quarterback Game of Their Lives: by Rad White
“Chicken Soup for the Grieving Soul: Stories about Life, Death and Overcoming the Loss of a Loved One” by Jack Canfield & Mark Victor Hansen
“Kitchen Table Wisdom: Stories that Heal by Rachel Naomi Remen
On Twin Loss:
“A Me Without We” by Eva Jo Sombath
“The Lone Twin: Understanding Twin Bereavement and Loss” by Joan Woodword
“Sam and Finn” by Kate Polley
On Children’s Grief:
“The Memory Box” by Joanna Rowland
“Forever Connected” by Jessica Correnti
“I am Still a Big Brother” by Bella Mody
“My Sibling Still: by Megan Lacourrege
“Our Heaven Baby” by Leah Vis
“Perfectly Imperfect Family” by Amie Lands
On Parenting:
“The Preemie Primer: A Complete Guide for Parents of Premature Babies-From Birth Through the Toddler Years and Beyond” by Jennifer Gunter
“Preemie Care: A Guide to Navigating the First Year with Your Premature Baby” by Karen Lasby RN, MN, and Tammy Sherrow RN Mn
“Preemie: Lessons in Love, Life and Motherhood” by Kasey Matthews
“From Hope to Joy: A Memoir of a Mother’s Determination and Her Micro Preemie’s Struggle to Beat the Odds” by Jennifer Degl
“Parenting for Humans” by Dr. Emma Svanberg
“How to Heal a Bad Birth” by Melissa Bruijn and Debby Gould
“Finding Your Way with Your Baby” by Dilys Daws and Alexandra de Rementaeria
“The Psychology of Babies” by Lynne Murray
“Dream Babies” by Christina Hardyment
“Birth Crisis” by Sheila Kitzinger
“Another Twinkle in the Eye” by Elaine Hanzak
“Why Breastfeeding Grief and Trauma Matter” by Amy Brown
“The Connected Baby” by Suzanne Zeedyk
“Our NICU Journey: A NICU Journal for Tracking…..” by Trish Ringley
Grief and Loss Support Groups:
The Compassionate Friends is a peer support organization for parents who have experienced the death of a child. They offer online and local chapter meetings, resources, education, and support for healing.
National Alliance on Mental Illness (NAMI): NAMI offers resources, including support groups, for various mental health challenges, including bereavement.
General/Local Resources:
Dialing 2-1-1 is a great way to connect with local services and get connected to grief support groups and other community resources in your area.
Many local hospitals, mental health services, and community centers offer grief support programs and information on local groups. You can check the websites for these institutions or call them directly to inquire about resources.
Online Resources:
David Kessler is one of the world's foremost experts on grief and loss. He is an author and trainer with a mission to help others heal from grief through videos, books, workshops & speaking engagements. He created the following online resources:
Tender Hearts is an online grief support community to help you move through loss with care, connection, and compassion.
Grief.com offers help for grief at https://grief.com
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